Perspectives regarding family disclosure of genetic research results in three racial and ethnic minority populations
Published in Journal of Community Genetics, 2020
The lack of data on perspectives of racial and ethnic minority populations regarding family disclosure of individual research results (IRR) hinders the development of return of IRR policies and practices that are meaningful and culturally appropriate in diverse populations. This research aims to uncover preferences regarding family disclosure of IRR and identify factors that may shape the preferences in three minority populations.
Recommended citation: Zhu, X., Basappa, S.N., Ridgeway, J.L., Albertie, M., Pantoja, E., Prescott, D., & Radecki Breitkopf, C. (2020). Perspectives regarding family disclosure of genetic research results in three racial and ethnic minority populations. Journal of Community Genetics. https://doi.org/10.1007/s12687-020-00472-6.